As the lyrics to Taylor Swift's hit song "Bad Blood" go: "Cause, baby, now we got bad blood. You know it used to be mad love." It's a song about falling out of friendship, but to 14-year-old Hallie Barnard, who was born with a rare blood disorder, the song holds a much deeper meaning.
At just 15 months old, Barnard was diagnosed (诊断) with Diamon Blackfin Anemia, or DBA, and she spent most of her life in and out of the hospital. The Swiftie said she relied on the singer to bring her joy.
The only way to survive DBA is with a bone marrow transplant (骨髓移植) and Barnard was desperate for one. But she knew thousands of other patients are, too. So, a few years ago, she decided to do something about it, creating her own foundation: Hallie's Heroes. "It started selfishly as just trying to save my life, but then we realized there were so many other children out there that needed a bone marrow transplant," she said. "So, so far we've tested 8,000 people and found over 300 matches."
After a 9-year wait, Barnard got her own match — through her own foundation. But more obstacles stood between her and normal life as a kid. The blood disorder led to a cancer diagnosis: osteosarcoma. She received surgery to cut the cancer out of her leg at MD Anderson in Houston.
The recovery was difficult, but Hallie said she stayed hopeful. "My survival instinct (本能) just kicked in. I was trying to do anything that I could to survive. So, of course, it was scary but in my mind, I was just thinking that I wanted to be at my sister's future weddings. I wanted to play games and run again," she said.
Her survival instinct — combined with Taylor Swift-helped her through her operation, where doctors cut her cancer out, and reattached her foot and ankle to her upper leg to work as a knee.
